What We Do
Fund research projects for advancing treatment of CHD
We are working to raise funds that go directly toward research initiatives for CHD. These projects include improvements for detection of defects, early assessment treatment, prevention of complications, better quality of life and more. Research projects exist all over the country, and we hope to fund special projects in other areas in the near future. Please check out our research page to learn more about projects happening in the Nashville community.
Spread awareness and education about the need for research and the lifelong challenges of those affected by CHD
Many people are unaware of the vast presence of CHD. 1 in 100 babies in the United States alone is born with this condition. However, it only receives approximately 1/3 of the funding of other childhood diseases. The only way to improve this is to continue educating people about its prevalence and the potential value associated with much needed research across the country. It is our goal to reach as many people as possible by telling Brett’s story and being a voice in as many ways as possible.
Partner with organizations dedicated to inclusion, opportunities and celebration for people with Down Syndrome
We are fortunate to have other organizations in our community that share in our mission, and we know we are better together. By participating in local events, sponsoring initiatives hosted by our mission partners and celebrating the gifts and successes of our friends with Down Syndrome, we are able to share the blessings of this special group of people and to serve as a reminder that we are all more alike than different.
Ongoing support for CHD patients, parents and providers
Spending any amount of time in the hospital is a challenging physically, mentally, financially and emotionally for most people. When you consider that many CHD patients spend weeks, months or longer hospitalized, it’s not hard to imagine the challenges that come for any family in that situation. When possible, our foundation supports the needs of these families in ways that hopefully lighten the burden in some way and allow them to focus on their own well-being while taking care of their loved ones.